Situation
The Danish Muscular Dystrophy Foundation (Muskelsvindfonden) is a well-established membership association for more than 3,000 people with muscular dystrophy and their relatives. The foundation is a key community for its members, where they can meet others in the same situation and receive important support in life with a disability. With a strategic ambition to be more for more people, the Danish Muscular Dystrophy Foundation is working in a targeted way to ensure that even more members benefit from the communities, advice services and activities the association offers.
Complication
A large proportion of the Danish Muscular Dystrophy Foundation’s members are currently active and engaged in the association’s services, but there is also a group that participates to a lesser extent. In order to strengthen the community for everyone, the foundation needed more knowledge about the members it hears from less often. Was their absence a sign of a lack of need, or an expression of other wishes and barriers that were not currently being met by the existing services?
Recommendation
Epinion carried out a mixed-method membership survey that gave a voice to the members it rarely hears from. The study was developed in close collaboration with members, with a focus on ensuring that everyone, regardless of disability, could take part. The life situation and perceived barriers of inactive members in particular were examined to create a deeper understanding of what is needed for more people to experience value in the community. The analysis has equipped the Danish Muscular Dystrophy Foundation to strengthen and better target its services – thereby taking an important step towards being more for more people.
